Courtesy of Joyce Esser This article first appeared in The Checkup, MIT Technology Review’s weekly biotech newsletter. To receive it in your inbox every Thursday, and read articles like this first, sign up here . Over the past couple of weeks, I’ve been speaking to people who have lost their voices. Both Joyce Esser, who lives in the UK, and Jules Rodriguez, who lives in Miami, Florida, have forms of motor neuron disease—a class of progressive disorders that result in the gradual loss of the ability to move and control muscles. It’s a crushing diagnosis for everyone involved. Jules’s wife, Maria, told me that once it was official, she and Jules left the doctor’s office gripping each other in floods of tears. Their lives were turned upside down. Four […]
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